SynGAP10 weekly 10 minute updates on SYNGAP1

SynGAP10 weekly 10 minute updates on SYNGAP1

Por: Syngap Research Fund, 501(c)(3)
Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
185 episodios disponibles

Latest episodes of the podcast SynGAP10 weekly 10 minute updates on SYNGAP1

Mostrando página 5 de 10

This is the ENDD of excuses. Sign up for the CHOP ENDD Study - #S10e105 19/05/2023
Connection for Science - #S10e104 09/05/2023
All About #Sprint4Syngap 2023! #S10e103 03/05/2023
McKee Data Webinar on Thursday! #SPRINT4SYNGAP in 4 days! The Emergency Plan, DSF Caregiver Connect, PGx, Cool Paper, Biorepository Collection! #S10e102 #DNAday 25/04/2023
SRF Supported Publication on NET, Siblings, Webinars, Frog Video, Clinical Trial Questions… #S10e101 15/04/2023
💯Episode 100!  Survey, GI, Biorepository, Press, PG, ASO Training, Sprint3 in 3 weeks!!!  #S10e100 08/04/2023
🌞🐒🐸SYNGAP1 is HOT: Gene Therapies, Monkey, COMBINEDBrain, Biorepository, Frazier, Frogs, 1,251 patients & studies #S10e99 01/04/2023
Building the SYNGAP1 SRF House - using the Milken Fastercures Research Partnership Maturity Model - #S10e98 24/03/2023
Talking to families with 2 year olds, 3 Webinars not to miss, and Sprint4Syngap, Stoke & Praxis Updates, GG Next 2023 Report - #S10e97 16/03/2023
Rare Disease Day 2023 was epic and you should have been there.  Sprint and Webinar update. #S10e96 06/03/2023
Rare Disease Day 2023 - Hattie Video, Coller & McKee Webinars, Missense SYNGAP1 iPSC, $20k, Apply for a Grant, Sprint4Syngap, Join us. #S10e95 28/02/2023
Time to fundraise for SYNGAP1 Research! Great info on Webinars, Blog, PRAX-222 & SynGAP Stories… #S10e94 23/02/2023
More on ENDD gift at Penn, but first, Finding SYNGAP1 Patients, Hotels & Grief in Florida - #S10e93 13/02/2023
10 Reasons SYNGAP-land is hopeful & exciting today #S10e92 08/02/2023
Why we need to keep talking about SYNGAP1 #S10e91 31/01/2023
Seven Ways to advance SYNGAP1 Research this week. Post video, take survey, tell us your opinion on Rare-X/Simons, Update Ciitizen, #SRFWW, JR’s book, Plan. #S10e90 21/01/2023
JR’s book, ORCA & RareX, Data talks, Update Ciitizen, Syndrome Management, ASOs for the Brain, Libby & Espy #S10e89 15/01/2023
New Grant, Rare Affair, SYNGAP1 research and events #S10e88 10/01/2023
SRF 2022 Numbers, Great Press, a wonderful wedding. #S10e87 04/01/2023
#SYNGAPconf22 was a hit, join us in 2023… #S10e86 29/12/2022
« Primera ‹ Anterior 1 ... 3 4 5 6 7 ... 10 Siguiente › Última »
© 2003-2025 ZARZA | AHEAD OF OUR TIME
privacy policy
In God we trust In God we trust
PreSales Questions? Click Here
or call our toll-free line at +1-888-5002068 Miami, Florida, USA