SynGAP10 weekly 10 minute updates on SYNGAP1

SynGAP10 weekly 10 minute updates on SYNGAP1

Por: Syngap Research Fund, 501(c)(3)
Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
184 episodios disponibles

Latest episodes of the podcast SynGAP10 weekly 10 minute updates on SYNGAP1

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Tell me your UnMet Need. CHCO ProMMiS!  Gut Paper with Citizen Health.  Rx Repurposing  - #S10e164 11/03/2025
RDD25 - Federal Funding - Hope vs Despair? Disability is Political. Take it or Advocate? #S10e163 28/02/2025
We are on the Hill Advocating for a better future – Sprint, DREEM, Travel & NET -  #S10e162 25/02/2025
Impact Report is out! Read the Stanford Knowles article. Sign up for Dreem. - #S10e161 12/02/2025
Don’t give up on your SYNGAPian at any age, Go Aaron! and advocacy matters - #S10e160 03/02/2025
Study Spotlight: Rochester 3 Needs Toddlers, Minovacca's Neuro Focus, & Key Research Updates - #S10e159 28/01/2025
SRF Roadmap Paper is published. Read and share with family and supporters. - #S10e158 Wednesday, January 15, 2025 14/01/2025
2025 is the year we double down on SYNGAP1.  Tune in now. -  #S10e157 10/01/2025
AES & SYNGAP1 Conf were great for SynGAP. 2 wks left to raise funds in ‘24 - #S10e156 17/12/2024
Annie -  #S10e155 26/11/2024
Cure SYNGAP1 is firing on all cylinders! 4MTx, C2C and the Conference is almost here! #S10e154 15/11/2024
Progress in Studies, Trials & Community Milestones; Conference #S10e153 02/11/2024
The Coast 2 Coast Challenge benefiting the SYNGAP1 #ProMMiS for Clinical Excellence is critical. #S10e152 22/10/2024
Nancy Leib Kessler is exceptional: Fundraising, Sibling, Advocating. Do Frazier and come to #SRFConf, #S10e151 18/10/2024
UFDTech, Eye-tracking, Praxis #DEEpDive, Stoke, Lacoste, Devinsky, #SRFConf, #S10e150 24/09/2024
Join Frazier Study, Combined Federal Campaign (33321), Unravel Study, new papers & Chronic Grief #S10e149 10/09/2024
Back2School, Unravel Bio, Support Gala & Scramble, Prez Search, Fondo & more great news #S10e148 22/08/2024
#SRFadvocates, #ColinFarrellFoundation, Adult Advocacy & the Best Science Team Ever #S10e147 11/08/2024
Zempleni, #SYNGAPconf, #ProjectACE, #ACENHS, Newsletter, #S10e146 27/07/2024
A tale of three grants… Coba Grant, Quadrato Grant & Anderson Paper! #S10e145 11/07/2024
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