Show NotesIn this conversation, Mark interviews David Tillman, a dedicated father of a son with Fragile X syndrome. David shares his journey as a parent, the challenges and joys of raising Miles, and the importance of community support. They discuss the impact of Fragile X syndrome on Miles' life, the significance of music and arts in education, and the need for advocacy in the disability community. David emphasizes the value of patience, understanding, and connection in navigating the complexities of raising a child with special needs.takeawaysDavid Tillman emphasizes the importance of dad representation in discussions about parenting children with special needs.Fragile X syndrome presents unique challenges, but also opportunities for connection and joy.Community support is crucial for families navigating disabilities.Music and arts can play a significant role in the development of children with special needs.Patience and understanding are key in helping children with disabilities thrive in social situations.The Fragile X community provides invaluable resources and connections for families.Social media can help families connect with others facing similar challenges.Advocacy is essential for ensuring that the needs of children with disabilities are met.Preparing for the future involves teaching independence and life skills from an early age.Every family’s journey is unique, and it’s important to celebrate the small victories.Sound Bites"I love talking about Miles.""We can do this, Miles.""It's a beautiful vision."Chapters00:00Introduction to David Tillman and His Journey02:18Understanding Fragile X Syndrome and Its Impact08:19Navigating Family Dynamics and Support Systems11:00The Importance of Community and Connection13:20Music as a Bonding Tool17:48The Need for Arts Programs in Disability Advocacy21:43Advocacy and Raising Awareness25:07Finding Balance and Celebrating Moments27:20Navigating Crisis Moments31:24Understanding Diagnosis and Support41:04Building Community Connections46:24Advocacy and Future PlanningInstagram: @xtraordinarymileshttps://www.linkedin.com/in/david-tillman-phd/

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