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SMA News & Perspectives

SMA News & Perspectives

Por: SMA News Today

Daily, digital coverage of the latest SMA news and perspectives.

442 episodios disponibles

Latest episodes of the podcast SMA News & Perspectives

Mostrando página 18 de 23

Early Access Program From Roche for SMA Therapy Risdiplam in Europe 14/02/2020

Accessible Travel, Becoming Friends With Your Caregivers and The Importance of Exercise With SMA 12/02/2020

New Treatment Algorithm For SMA Infants Via Vital Newborn Screening & Going To The Bathroom 10/02/2020

ZPR1 Protein May Be New PotentialTherapeutic Target For SMA & NBC's Pilot Featuring Kid With SMA 07/02/2020

Embracing The Power of Your Voice & Struggling As a Family 05/02/2020

#51 - Interview with Ryan Manriquez and Nora Zade 04/02/2020

100 Free Zolgensma Treatments Worldwide in 2020 & Unplugging the iPad, Waste of Time 03/02/2020

Adults With SMA Tend To Report Low Prevalence of Non-Motor Symptoms & Reading From the SMA Forums 31/01/2020

Managing Stomach Issues As SMA Patient & Great Conversation in the SMA News Today Forums 29/01/2020

Regular CSF Exams Are Urged Following Spinraza Treatments & Smart Home Devices 27/01/2020

Regular CSF Exams Are Urged Following Spinraza Treatments & Smart Home Devices 27/01/2020

HHS Secretary's Efforts To Cure Rare Diseases & Taking Advantage of New Opportunities 24/01/2020

Being Rare and Resilient & No Topic Is Off Limits on The SMA News Today's Forums 22/01/2020

#50 - Roundtable Discussion - January 2020 21/01/2020

Spinraza Stabilizes or Improves Motor Function in Older SMA Patients & The Reality of Aging 20/01/2020

Multidisciplinary Approach Improves Spinraza Dosing Process in SMA Patients & Parenting and SMA 17/01/2020

Importance of Media Representation for People With Disabilities & Conversations in the SMA Forums 15/01/2020

Targeted Genetic Screening Helps Diagnosing Patients With SMA-Like Symptoms & Pranking With SMA 13/01/2020

Early Trial Data Shows SRK-015 Increases Myostatin Growth Factor Levels in SMA Patients 10/01/2020

Early Trial Data Shows SRK-015 Increases Myostatin Growth Factor Levels in SMA Patients 10/01/2020

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