SMA Australia

SMA Australia

Por: Alba Prime
Spinal Muscular Atrophy (SMA) is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease.If you are newly diagnosed, or have just come across our page for the first time, we urge you to get involved, within the SMA community here in Australia. We would love to hear from you and are happy to support you on your journey. We acknowledge that each person is different, and we endeavour to assist you and your requirements.
22 episodios disponibles

Latest episodes of the podcast SMA Australia

Understanding the neurobiology of Fragile X syndrome and behaviours (Dr Marcia Braden) 16/07/2025
The Benefits of Intensive Therapy (Webinar) 23/05/2022
Field Studies from the NSW Newborn Screening Pilot - Webinar 11/11/2021
What About Me? Accessing Treatments for Adults 10/10/2021
Newborn Screening Advocacy Next Steps (Webinar) 19/08/2021
Why do I need to see an adult Neurologist 28/06/2021
Q&A with Jo Watson 27/05/2021
The Importance of a patient registry and why to participate 05/05/2021
Getting involved in sports with a disability 21/04/2021
Self Managing your NDIS 22/02/2021
Adult working group and next steps 26/01/2021
SMA Webinar - Best Practices 23/11/2020
Supporting the Emotional Health of our SMA families During Uncertain Times 23/10/2020
PBAC Processes and Consumer Input 21/09/2020
SMA Parliamentary Summit 2019 18/09/2019
Fiona Tolich 04/09/2019
James Ian 19/08/2019
Sook Yee 09/08/2019
Al Freedman 01/08/2019
June 2019 Update 03/06/2019
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