Getting that Diagnosis, Fighting for Your Care, and Self Advocacy: A Conversation with Brandee and Nikki

Sister, You're Not Alone
11/02/2022 1h 10min Episodio 2
Getting that Diagnosis, Fighting for Your Care, and Self Advocacy: A Conversation with Brandee and Nikki

Listen "Getting that Diagnosis, Fighting for Your Care, and Self Advocacy: A Conversation with Brandee and Nikki"

Descargar episodio Ver en sitio original

Episode Synopsis

I met Brandee and Nikki through their instagram account @VWDSisterhood. I was so inspired by the way they are spreading awareness and advocating for women with bleeding disorders. We discussed each of their journeys from onset of their symptoms, struggles into adulthood and how they were able to get the care they needed to where they are today and the work they are now doing to help other women. Here is a great list of resources in the US for further information on bleeding disorders. https://www.hemophilia.org/bleeding-disorders-a-z/types/von-willebrand-disease   https://www.hemophiliafed.org/home/understanding-bleeding-disorders/what-is-vwd/   https://www.cdc.gov/ncbddd/vwd/   https://www.cdc.gov/ncbddd/hemophilia/HTC.html   https://www.hemophilia.org/events/bleeding-disorders-conference     Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721

More episodes of the podcast Sister, You're Not Alone

Finally Getting Diagnosed at 46, Impacts on Quality of Life, and Failings of Medical Physicians: A Conversation with Dani 20/01/2023
Growing Up with Factor 1 (Fibrinogen) Deficiency, Surviving Hep C, and Endometrial Cancer: A Conversation with Angel 09/12/2022
Clinical Research for the Advancement of Women's Care: A Conversation with Dr. Michelle Sholzberg 11/11/2022
Gynaecological Issues, Finding Solutions and Clinical Trials: A Conversation with Nicki 21/10/2022
Getting a Diagnosis, Family Guilt, and Navigating Dating & Relationships, As a Woman with a Bleeding Disorder: A Conversation with Lauren 30/09/2022
Raising a Child with VWD Type 3, a Mother's Perspective: A Conversation with Carly 26/08/2022
The Importance of Doing Your Research, Making Connections and Learning to Advocate...A Mother's Perspective: A Conversation with Elena 08/07/2022
Living with VWD Type 3, Family Planning, New Treatment Options, and Impacts on Mental Health: A Conversation with Michelle 17/06/2022
Having a Child with VWD Type 3, a Mothers Perspective: A Conversation with Richelle 03/06/2022
Self Advocacy and Employee Rights, the Challenges Faced by Women with Bleeding Disorders: A Conversation with Fabiola 13/05/2022
© 2003-2025 ZARZA | AHEAD OF OUR TIME
privacy policy
In God we trust In God we trust
PreSales Questions? Click Here
or call our toll-free line at +1-888-5002068 Miami, Florida, USA