What is it like to live with Huntington's disease?

12/05/2025 29 min Temporada 2 Episodio 6
What is it like to live with Huntington's disease?

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Episode Synopsis

Stacey brings in a special guest to dive into the human side of science. Ali isn’t just living with Huntington’s, he grew up in a Huntington’s family, watching the disease echo through generations. Ali shares the moment a DNA test turned 'maybe' into certainty and the tight-rope walk between hope and honesty when a partner asks, “Do we try for kids?”.  It’s human, nuanced, and a powerful insight into scientific ethics: autonomy, privacy, reproductive choice, and the right to not know. Because science isn’t just Petri dishes, it’s people, futures, and the fork-in-the-road decisions that keep your mind racing at night. Curriculum Links: Biology: Genetics and heredity including DNA structure and function, inheritance (transmission of genetic information), genetic variation and diversity (mutations, epigenetics) and developmental biology including embryonic development (cellular differentiation, role of genes).Physics: Technological applications of physics in genetic research (e.g., imaging techniques) and principles of measurement and data analysis in biological contexts.See omnystudio.com/listener for privacy information.