The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy

Seizing Life
03/07/2024 34 min
The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy

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Episode Synopsis

After losing her son to a rare form of epilepsy called NORSE, or New Onset Refractory Status Epilepticus, Nora Wong set out to get answers from doctors and researchers. When she found little information and more questions, she founded the NORSE Institute to raise awareness and fund research into this sudden and devastating form of epilepsy.

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