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Listen "Living with Cystic Fibrosis, Miracle Medication, Reaching Life Goals, Healthcare & Advocacy | Gunnar Esiason"
Episode Synopsis
In this episode, Amy Sylvis sits down with Gunnar Esiason, a prominent figure in the cystic fibrosis (CF) community. Gunnar delves into his remarkable journey, recounting his diagnosis at a young age and his family's commitment to raising awareness and funds for CF research through the Boomer Esiason Foundation. Despite facing challenges, Gunnar's passion for patient empowerment and early-stage drug development led him to pivotal roles in healthcare and advocacy.
Despite facing challenges with CF, Gunnar's resilience and determination led him to pursue higher education, ultimately earning an MBA and MPH. Throughout the conversation, Gunnar reflects on his life before and after receiving the breakthrough drug TRIKAFTA, describing what it was like taking his first dose. He shares personal insights into balancing work, family, and supporting the CF community, acknowledging the interconnectedness of these aspects in shaping his abundant life.
His story serves as an inspiration for all – showcasing the power of perseverance and advocacy in the face of adversity.
More about Gunnar:
Gunnar Esiason is a cystic fibrosis and rare disease patient leader, who is passionate about early-stage drug development, patient empowerment and health policy. He is the head of patient engagement at RA Capital's venture group, RA Ventures.
Professionally, he developed a patient engagement platform for a medical nutrition company, built a venture philanthropy practice at the Boomer Esiason Foundation which has yielded more than $160 million raised for the fight against cystic fibrosis since he was diagnosed with the disease in 1993. He has consulted on clinical trial development, a real-world evidence population health study, and a cystic fibrosis-specific mental health and wellness screening tool. His blog has amassed nearly 1 million page views since 2015. His podcast, the State of Health, is available on all streaming platforms.
Gunnar holds an M.B.A. from the Tuck School of Business at Dartmouth, where he was a Wilson Scholar and received the Julia Stell Award, an M.P.H. from the Dartmouth Institute for Health Policy & Clinical Practice, and a B.A. from Boston College.
His health policy opinions have been featured in the Wall Street Journal, USA Today, The Hill, and STAT News.
Connect with Gunner:
esiason.org
twitter.com/g17esiason
Connect with Amy Sylvis:
sylviscapital.com
sylviscapital.com/webinar
linkedin.com/in/amysylvis
Despite facing challenges with CF, Gunnar's resilience and determination led him to pursue higher education, ultimately earning an MBA and MPH. Throughout the conversation, Gunnar reflects on his life before and after receiving the breakthrough drug TRIKAFTA, describing what it was like taking his first dose. He shares personal insights into balancing work, family, and supporting the CF community, acknowledging the interconnectedness of these aspects in shaping his abundant life.
His story serves as an inspiration for all – showcasing the power of perseverance and advocacy in the face of adversity.
More about Gunnar:
Gunnar Esiason is a cystic fibrosis and rare disease patient leader, who is passionate about early-stage drug development, patient empowerment and health policy. He is the head of patient engagement at RA Capital's venture group, RA Ventures.
Professionally, he developed a patient engagement platform for a medical nutrition company, built a venture philanthropy practice at the Boomer Esiason Foundation which has yielded more than $160 million raised for the fight against cystic fibrosis since he was diagnosed with the disease in 1993. He has consulted on clinical trial development, a real-world evidence population health study, and a cystic fibrosis-specific mental health and wellness screening tool. His blog has amassed nearly 1 million page views since 2015. His podcast, the State of Health, is available on all streaming platforms.
Gunnar holds an M.B.A. from the Tuck School of Business at Dartmouth, where he was a Wilson Scholar and received the Julia Stell Award, an M.P.H. from the Dartmouth Institute for Health Policy & Clinical Practice, and a B.A. from Boston College.
His health policy opinions have been featured in the Wall Street Journal, USA Today, The Hill, and STAT News.
Connect with Gunner:
esiason.org
twitter.com/g17esiason
Connect with Amy Sylvis:
sylviscapital.com
sylviscapital.com/webinar
linkedin.com/in/amysylvis
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