Listen "Rare Disease Day: Sushmita's story"
Episode Synopsis
In this episode of our Rare on Air Stories bonus series marking Rare Disease Day, we share Sushmita’s powerful journey with Amelogenesis Imperfecta (AI), a rare genetic condition affecting the development of tooth enamel. Growing up, Sushmita faced social stigma, judgment, and painful dental treatments, but her father’s encouraging words helped her turn adversity into purpose.Today, Sushmita is an advocate for AI awareness, sharing her story through blogs and presentations at medical seminars. Her journey reminds us that kindness and understanding can make a lasting impact on the lives of those with rare conditions.Visitrarediseaseday.org to share your story or get involved. Rare Disease Day is on 28 February 2025.
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