Listen "Rare Disease Day: Khim's story"
Episode Synopsis
In this episode of our bonus series marking Rare Disease Day, we share the inspiring story of Khim Bahadur. When Khim's son, Animesh, was diagnosed with Osteogenesis Imperfecta (OI), he encountered a daunting lack of resources and awareness in Nepal. Undeterred, Khim sought global support, securing life-changing treatment abroad for Animesh and becoming a trailblazer for OI advocacy in Nepal. Through education, media campaigns, and community building, Khim continues to drive rare disease awareness and inspire others across the nation.
Visit rarediseaseday.org to share your story or get involved. Rare Disease Day is on 28 February 2025.
Visit rarediseaseday.org to share your story or get involved. Rare Disease Day is on 28 February 2025.
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