PWS United

PWS United

Por: PWSA | USA
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.

This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.

Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
75 episodios disponibles

Latest episodes of the podcast PWS United

Mostrando página 3 de 4

Ep35: PWS and Sibling Support 01/04/2025
Ep34 Pulse 119: Awareness, Staying Cool at Conference, Sibling Stories, Clinical Trial with Tirzepatide 25/03/2025
Ep33: Special Education and the Department of Ed. 18/03/2025
Ep32Pulse 118: Harmony Webinar, Hot Stove Dinner, State Advocacy, TREND GI Report, Community Publications 11/03/2025
Ep31 PWS Awareness Starts Here: Fundraising with Hope United & United We Brunch 04/03/2025
Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action 25/02/2025
Ep 29: Pioneers in PWS - Residential Care and the Professional Providers Advisory Board 18/02/2025
Ep28 Pulse 116: Growth Hormone Pioneer, Advocacy Wins, TREND Report on Behavior, Job Announcement 11/02/2025
Ep27: Advocacy with Terry Wilcox from Patients Rising 04/02/2025
Ep26: Clinical Trial Perspectives Part 1 28/01/2025
Ep25 Pulse 115: Countdown to Conference, Hot Stove Dinner, Changes at FDA, Volunteer Spotlight, Sertraline 21/01/2025
Ep24 TREND & PWS Connect 14/01/2025
Ep 23 Pulse 114: Celebrating 50 Years of Hope, Advocacy Class, PWSA Egypt, Journeys Project on Discord, Community Stories 07/01/2025
Ep22 Pulse 113: Marathon Runner, Inclusive Advocacy, Art Share Extension, PWS in Adulthood, The Holidays 24/12/2024
Ep21 Meet the PWSA | USA Staff 17/12/2024
Ep20 Pulse 112: Angel Drive, Georgia Advocacy, Growth Hormone, Clinical Trial Journey 10/12/2024
Ep19 Caring for the Caregiver 03/12/2024
Ep18 National Adoption Month, Adopting a Loved One with PWS 26/11/2024
Ep17 Pulse 111: 15Q Day, Hope in Action, Trend Pain Report, Hyperphagia Study 19/11/2024
Ep16 Self-Care, Self-Advocacy, and Gratitude 12/11/2024
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