PWS United

PWS United

Por: PWSA | USA
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.

This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.

Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
76 episodios disponibles

Latest episodes of the podcast PWS United

Mostrando página 2 de 4

EP55: Hope, Perseverance, and Soleno's Path to an FDA-Approval for Prader-Willi Syndrome 26/08/2025
Ep55 (Bonus Episode!): Leave a Lasting Legacy with PWSA | USA 21/08/2025
EP54: Pulse 129: Nonprofit Day, Gala Emcee, Rare Across America, Parent Training for IEPs 19/08/2025
Ep53: Empowering Families with Dr. Destiny Pacha, Parent Submissions 12/08/2025
Ep52 Pulse 128: Make-A-Will Month, Big Advocacy Win, Dance Silly for Prader-Willi, BOSS Program Update, Harmony Biosciences Webinar 05/08/2025
Ep51 ADA History and Advocacy 29/07/2025
Ep50 Pulse 127: 50th Gala, Sunshine Act, BOSS Program, Golf Gimmes 22/07/2025
Ep 49: Endocrine in Teens and Adults: Conference Session 15/07/2025
Ep48 Pulse 126: Conference Wrap Up, PWS Comic Book, Interactive Map, Law Enforcement Letter 08/07/2025
Ep 47: Nutrition Recommendations for PWS: Conference Session 01/07/2025
Ep46: Pioneers in PWS Series - The Parent Mentoring Program 17/06/2025
Ep45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream 10/06/2025
Ep 44: PWSA, IPWSO, FPWR: United in Hope 03/06/2025
Ep43: All Things Conference 27/05/2025
Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner 20/05/2025
Ep41: PWS Origin Stories, Success, and Awareness 13/05/2025
Ep40 Pulse 122: PWS Awareness Month, Family Conference Registration Closed, Interview with Destiny Pacha, VYKAT XR Townhall Summary 06/05/2025
Ep39 Unlocking a New Path to Treat Hyperphagia in PWS: A Conversation with Aardvark Therapeutics 29/04/2025
Ep38 Pulse 121: Occupational Therapy Month, Conference Cap, Awareness Month Proclamation, Financial Security Webinar 22/04/2025
Ep37 Ask Nurse Lynn: Growth Hormone, Skin-Picking, GLP-1s 15/04/2025
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