PWS United

PWS United

Por: PWSA | USA
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.

This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.

Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
75 episodios disponibles

Latest episodes of the podcast PWS United

Ep74: Pulse138: DC Fly In Applications, Mental Wellness, Save the Dates for 2026 06/01/2026
Ep73: Stacy's End of Year Message 30/12/2025
Ep72 Pulse 137: End of Year Reflection, Holiday Traditions and Tips, Clinical Trial Wrap-Up 23/12/2025
Ep71: Christian Garzia: Humor, Fairness, and Protection 16/12/2025
Ep70 Pulse 136: In Memory of Fausta, Give Kids a Chance Act, HERO Study Expansion, PWS Relationships Study 09/12/2025
Ep69: Joe Gill: Inclusion, Purpose, and the Little Things 02/12/2025
Ep68 Pulse 135: Holiday Preparation, Prader Silly Recap, 2026 D.C. Fly-In, PWS and Diabetes, Research Spotlight 25/11/2025
Ep67: Broken Systems, Enduring Love, Single Caregivers Series 18/11/2025
Ep66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude 11/11/2025
Ep65: Grit, Grace, and Family, Single Caregivers Series 04/11/2025
Ep64: Henry McDonald: Dynamic Duo, Superhero 28/10/2025
Ep63: Nile Hope Workshop and Camp, Department of Education Layoffs, Prader Silly Live Auction 21/10/2025
Ep62: Teaching Emotional Regulation in Individuals with PWS: ABA Strategies for Lasting Success 14/10/2025
Ep61 Pulse 132: Gala Recap, DUR Boards, TREND Journey Prompts, Bullying Prevention Month 07/10/2025
Ep60: Rockie Penta: Caregiver, Roommate, Best Friend 30/09/2025
Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns 23/09/2025
EP58: Recognizing the Unsung Heroes of PWS 16/09/2025
Ep57 Pulse 130: Direct Support Professionals Week, DUR Written Testimony, Recursos en Español 09/09/2025
EP56: Celebrating One Year of Podcasting 02/09/2025
EP55: Hope, Perseverance, and Soleno's Path to an FDA-Approval for Prader-Willi Syndrome 26/08/2025
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