Listen "COVID & Lupus"
Episode Synopsis
Your immune system is your body's main defense against germs and illnesses. When you have lupus, you're more prone to infections because your immune system works differently than most people's. It becomes overactive and attacks your body itself. Our guest on today's show is another repeat guest, Amber Blackburn. Amber is a Registered Nurse turned blogger and patient advocate for those with chronic illnesses. She deals with Hemiplegic Migraines and Lupus and unfortunately she caught COVID at the very start of the Pandemic. She was forced to leave the workforce after ten years as a nurse; this gave her the patient medical experience and perspective. Being diagnosed and living with a chronic illness has given her the experience of everyday living so she understands both sides of the coin. Amber lives with Systemic Lupus, Migraines, Fibromyalgia, Interstitial Cystitis, IBS, Anxiety, Depression and Adrenal Insufficiency secondary to long term steroid use. Since being forced to leave the traditional workforce due to her illnesses, she has become a strong patient advocate and blogger with her blog being "The World Sees Normal." Amber works with the Chronic Disease Coalition. She has had her work published by The Mighty, Yahoo and has been nominated for four WEGO Health Awards. She has published a symptom tracker for those with chronic conditions to track their symptoms and pain to share with their Drs. She understands the need for good communication between patients and doctors, but also support the chronic illness community, making sure those living with illnesses understand they are not alone or isolated.
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