On this episode of People Are Saying features Andrea and Phil Marella, co-founders of Dana's Angels Research Trust, a nonprofit accelerating research, awareness, and treatment for Niemann-Pick Type C (NPC) - an ultra-rare and devastating childhood disease. Andrea and Phil share their family's journey through grief and resilience, and how it sparked a mission of activism, scientific partnership, and hope. Together, they discuss the urgent need for funding and collaboration in rare disease research, and the breakthroughs Dana's Angels is working toward to change outcomes for children and families affected by NPC. https://danasangels.org/

Ver todos los episodios