Once Upon A Gene

Once Upon A Gene

Por: Effie Parks
As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have proved the world wrong.
345 episodios disponibles

Latest episodes of the podcast Once Upon A Gene

Mostrando página 15 de 18

Effisode - Caregiver Personal Trainer Wanted 01/12/2020
Turkey Soup for the Soul 26/11/2020
Effisode - Out with the Ick 17/11/2020
Effisode - Friendship, Inclusion, and Tough Conversations 03/11/2020
Living With Chronic Pain - International Pain Foundation President Barby Ingle 22/10/2020
Effisode - Making Friends and Talking About Differences 20/10/2020
Effisode - Merch, Napa Center, and Beach Adventures 06/10/2020
Reflecting on 50 Episodes with Effie and Casey 01/10/2020
Thanatophoric Skeletal Dysplasia with Ashequka Lacey 24/09/2020
Fake It Til You Make It - Public Speaking, Road Trips and Intensive Therapy 22/09/2020
What is Chronically Surviving with Marcelle Longlade 17/09/2020
Ciitizen - Take Control of Your Own Medical Records and Advance Research with Nasha Fitter 10/09/2020
School Busses, Road Trips and Friendship 08/09/2020
A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane 03/09/2020
Two Disabled Dudes - Kyle Bryant and Sean Baumstark 27/08/2020
Rare Together, Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes 26/08/2020
Effisode - Let Me Tell You About My Big Brother 25/08/2020
A Mother's Crusade to Find a Cure for Her Son - Amber Freed, Founder and CEO, SLC6A1 Connect 20/08/2020
David Fajgenbaum - Chasing My Cure - A Doctor's Race to Turn Hope into Action 13/08/2020
Effisode 001 11/08/2020
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