MyFSHD

Por: Peter L Jones, PhD
MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
106 episodios disponibles

Latest episodes of the podcast MyFSHD

Mostrando página 4 de 6

Our FSHD Dad is back with more questions, comments and concerns on biomarkers, clinical trials, MRI, and supplements 19/08/2022
Fixing FSHD down under (and everywhere) with FSHD Global Research Foundation 13/08/2022
More on nutrition, supplements, and lifestyle/exercise. 11/08/2022
Saturday catchup and a little bit more on FSHD-like minipigs, Aug 6, 2022 06/08/2022
Bringing home the bacon with Jenny, Ben, Peter, and FSHD-like minipigs. 03/08/2022
Weekend catchup, July 31, 2022; hanging out in the high Sierra Nevada for summer Sunday brunch with Brad and Peter discussing all things FSHD. 31/07/2022
We ain't dead yet, so we can get better. Welcome to the 40th podcast episode! 27/07/2022
Saturday FSHD catch-up, July 16th 2022 26/07/2022
MyFSHD welcomes Chris Carrino 20/07/2022
FSHD in the UK with Kate and Dr. Channa Hewamadduma 13/07/2022
A little bit deeper into DNA methylation. 09/07/2022
Back in Reno, Dr. Peter Jones fields some questions from all of you. 01/07/2022
Saturday catchup with questions and comments around FSHD, June 25, 2022 25/06/2022
World FSHD Day 2022 with Ms Nguyen Cam Thi and Dr. Jones 20/06/2022
A student in FSHD research 15/06/2022
Saturday catch up with questions and comments around FSHD, June 11, 2022 11/06/2022
FSHD Biomarkers and IL-6 targeted therapy 09/06/2022
Saturday catch up with questions and comments around FSHD, June 4th, 2022 04/06/2022
Fire Inspector Brad, our FSHD Dad, brings more questions on the drug development pathway for FSHD 01/06/2022
Saturday catch up with questions and comments around FSHD, May 28, 2022 29/05/2022
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