MyFSHD

Por: Peter L Jones, PhD
MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
106 episodios disponibles

Latest episodes of the podcast MyFSHD

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A FORTITIDE follow-up with our (not so) Angry Dad. 22/06/2024
A(+) is still for Avidity: give me the good stuff! 14/06/2024
Pigs and p38 01/06/2024
The three little (FSHD) piggies. 28/01/2024
CRISPR in the clinic 24/12/2023
Allow me to reintroduce Jaegerthekidd 04/11/2023
Assessing the case, so far, for apabetalone as a new drug candidate being investigated for FSHD. 01/11/2023
Catching up on clinical trials 24/09/2023
Live from Australia 13/09/2023
A gene therapy approval for Duchenne muscular dystrophy and understanding Therapeutic Misconception. 28/07/2023
More questions, more answers, and some explaining to do. 20/06/2023
Your questions, our answers. 10/06/2023
Live from the Biologic Scaffolds for Regenerative Medicine Symposium in Napa California 27/05/2023
We are back with updates on our worldwide efforts for FSHD diagnostics. 17/05/2023
Roundup of the FSHD news of the day with our CRISPR Goddess. 12/04/2023
The return of Brad (the angry dad). 26/03/2023
Rare Disease Day and Accountability 10/03/2023
Reintroducing the MyFSHD podcast 25/02/2023
"A" is for Avidity 13/02/2023
We have a lot in common with pigs. "Don't flatter yourselves", reply the pigs :). 06/02/2023
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