69. Simon and Martina Stawski, Navigating the Ups and Downs of Ehlers-Danlos Syndrome as a Team

28/01/2020 50 min Temporada 5 Episodio 69
69. Simon and Martina Stawski, Navigating the Ups and Downs of Ehlers-Danlos Syndrome as a Team

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Episode Synopsis

YouTubers Simon and Martina Stawski share many aspects of their lives with their audience, including how they approach Martina's diagnosis of Ehlers-Danlos syndrome (EDS). On today's episode, I talk with Simon and Martina about how honest conversation plays a huge role in their team effort to manage EDS. We also talk about the ups and downs of managing a chronic illness, what they choose to share with their fans, and why the term "caregiver" doesn't feel like the right way to describe Simon's role.  Learn more about Allie and check out the show notes here. Follow Made Visible on Instagram. Provide us with feedback on the podcast here. 

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