107. Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness

28/02/2023 35 min Temporada 8 Episodio 107
107. Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness

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Episode Synopsis

Join Lara Bloom and host, Harper Spero, for a special IG Live event on March 1st at 11:00AM EST! Follow @madevisiblestories on Instagram to tune in.   Before being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn't uncommon. On today's episode, Lara and I talk about why she's dedicated her career to EDS awareness, why it's important to her that The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS.  This episode previously aired on February 18th, 2020.  For more information about Lara and her journey with Ehlers-Danlos Syndrome, visit our website at madevisiblestories.com/podcast   This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode!    Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis,treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.  Join the conversation and connect with us online! Website: madvisiblestories.com Facebook: madevisiblepodcast Instagram: @madevisiblestories LinkedIn: madevisible Support for this episode comes from Find Your/self Boxes. Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at www.findyourselfboxes.com.   – Podcast Editor & Strategist: @episodeready  

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