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Listen "SSIEM 2022 special episode"
Episode Synopsis
Professor Ute Spiekerkoetter co-hosts a special episode of the podcast, compiled to accompany the SSIEM 2022 themed issue from September 2023 and look back on a wonderful meeting hosted in Freiburg the year before.
This episode features three different papers and you jump straight to these at the following locations:
6 min 25 sec: Dr Carla Hollak, Noa Rosenburg and Nina Stolwijk discuss public-private partnerships in drug development
27 min 10 sec: Professor Martina Huemer explains how we should all be using patient reported outcome measures in our work
37 min 16 sec: Kiera Batten explains the role of exercise and exercise prescription in inherited metabolic disease
Development of medicines for rare diseases and inborn errors of metabolism: Toward novel public–private partnerships
Noa Rosenberg, et al
https://doi.org/10.1002/jimd.12605
Measuring what matters: Why and how to include patient reported outcomes in clinical care and research on inborn errors of metabolism
Martina Huemer, et al
https://doi.org/10.1002/jimd.12622
Exercise testing and prescription in patients with inborn errors of muscle energy metabolism
Kiera Batten, et al
https://doi.org/10.1002/jimd.12644
This episode features three different papers and you jump straight to these at the following locations:
6 min 25 sec: Dr Carla Hollak, Noa Rosenburg and Nina Stolwijk discuss public-private partnerships in drug development
27 min 10 sec: Professor Martina Huemer explains how we should all be using patient reported outcome measures in our work
37 min 16 sec: Kiera Batten explains the role of exercise and exercise prescription in inherited metabolic disease
Development of medicines for rare diseases and inborn errors of metabolism: Toward novel public–private partnerships
Noa Rosenberg, et al
https://doi.org/10.1002/jimd.12605
Measuring what matters: Why and how to include patient reported outcomes in clinical care and research on inborn errors of metabolism
Martina Huemer, et al
https://doi.org/10.1002/jimd.12622
Exercise testing and prescription in patients with inborn errors of muscle energy metabolism
Kiera Batten, et al
https://doi.org/10.1002/jimd.12644
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