Insightful Moments: My VIBE

Insightful Moments: My VIBE

Por: PTC Therapeutics
Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that we’re all in this together.
17 episodios disponibles

Latest episodes of the podcast Insightful Moments: My VIBE

Friedreich's Ataxia Symposium Part 1 17/09/2025
The Parenting Challenge 16/12/2024
Friedreich's Ataxia Symposium Part 2 05/12/2023
Global Genes RARE Advocacy Summit - Part 2 05/12/2023
Global Genes RARE Advocacy Summit - Part 1 05/12/2023
The Effects of Huntington’s Disease - Part 2 05/09/2023
The Effects of Huntington’s Disease - Part 1 05/09/2023
Duchenne Sibling Experience (Spanish Episode) 26/04/2023
The Unconditional Love of Duchenne Caregivers (Spanish Episode) 29/03/2023
Perspective from a Duchenne Mom and Healthcare (Spanish Episode) 01/03/2023
Navigating Independence with PKU with Maridith, Lauren, and Abigaill 19/12/2022
Living with PKU, with Linda and Kendall 19/12/2022
Advocating within the PKU Community 13/12/2022
Independence and Assistance with Ben and Ryan 03/11/2022
Sibling Support 29/09/2022
Finding Out You Have a Rare Disease 06/09/2022
Welcome to Insightful Moments: My VIBE 29/08/2022
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