FSHD Society Radio Telethon 2019 episode 3

FSHD Straight Talk with Tim Hollenback
29/12/2019 50 min
FSHD Society Radio Telethon 2019 episode 3

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Episode Synopsis

This episode features three interviews from the 2019 Giving Tuesday telethon event. First interview is with Kiley Higgs. Kiley is the Kansas City FSHD Society Chapter director and she is the manager for the clinical trial research network with UK Medical Center. The second interview is with Dave Lukas, The Chicagoland chapter director. Finally Beth Johnston, FSHD Society's Chief Community Development office talks about the chapters and Walk 'N Roll events.

More episodes of the podcast FSHD Straight Talk with Tim Hollenback

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158: Always a Work in Progress: Growth through Movement, Connection, and Adapation with Elissa 28/10/2025
157: Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion 14/10/2025
156: Lived Experience Matters: The Impact of Storytelling in Rare Disease Communities & Advocacy with Michael King 23/09/2025
155: 2025 Walk & Roll Special 20/09/2025
154: Don’t Let It Get to You: Living & Growing with FSHD with Kendra Vaalemon 26/08/2025
153: More Laughter, More Love: Reflections on an Inter-Abled Relationship with Leah & Joe Lee 12/08/2025
152: A Career Retrospective: Over a Decade of Care, Advocacy & Writing with June Kinoshita 22/07/2025
151: A Parent’s Perspective: FSHD History, Advancements & What We Can Do Now 08/07/2025
150: The Power of Vulnerability with Aidan Mace, FSHD Straight Talk with Tim Hollenback 24/06/2025
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