FSHD Straight Talk with Tim Hollenback

FSHD Straight Talk with Tim Hollenback

Por: FSHD Straight Talk
This talk show features people, advocacy, research, and more from the FSH muscular dystrophy community. Sponsored by the FSHD Society and made possible by our fabulous host and member of the FSHD community, Tim Hollenback.



173 episodios disponibles

Latest episodes of the podcast FSHD Straight Talk with Tim Hollenback

159: Do Hard Things: Movement is Medicine & Riding to Raise Awareness about Early Onset FSHD with George Pollock & Ally Roets 11/11/2025
158: Always a Work in Progress: Growth through Movement, Connection, and Adapation with Elissa 28/10/2025
157: Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion 14/10/2025
156: Lived Experience Matters: The Impact of Storytelling in Rare Disease Communities & Advocacy with Michael King 23/09/2025
155: 2025 Walk & Roll Special 20/09/2025
154: Don’t Let It Get to You: Living & Growing with FSHD with Kendra Vaalemon 26/08/2025
153: More Laughter, More Love: Reflections on an Inter-Abled Relationship with Leah & Joe Lee 12/08/2025
152: A Career Retrospective: Over a Decade of Care, Advocacy & Writing with June Kinoshita 22/07/2025
151: A Parent’s Perspective: FSHD History, Advancements & What We Can Do Now 08/07/2025
150: The Power of Vulnerability with Aidan Mace, FSHD Straight Talk with Tim Hollenback 24/06/2025
149: World FSHD Day Special - Supercut 20/06/2025
148: Rolling Around Fundraising: The Story & Perseverance of the Ahlers Family 10/06/2025
147: Hopeful Science: an Interview with the Myoterra Team 27/05/2025
146: Fiercely an Advocate: Living with Early-onset FSHD 13/05/2025
145: Powering the Path Forward with Erin Saxon 22/04/2025
144: Growth Through Coaching, a Solo Episode of FSHD Straight Talk with Tim Hollenback 08/04/2025
143: Pushing Through, Gaining Ground: Athletics & Life with FSHD 25/03/2025
142: Caregiving & Advocacy: Stories of the Then & the Now 11/03/2025
141: Finding Synergy, Innovation & Commitment in Our Care Networks with Gregg Lichtenstein, FSHD Straight Talk 25/02/2025
140: A Passion for Education & Independence with Nia Stivers, FSHD Straight Talk 11/02/2025
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