Dr. Marcia Braden talks about the challenges of caring for individuals with this disability as they grow older and become adults, and the importance of promoting independence. She presents two case studies of men with Fragile X, one of whom lives in a group home and the other with his mother, and discusses the difficulties they face in becoming independent. The speaker emphasizes the need for structure and practical strategies to support independence, and acknowledges the emotional challenges faced by parents and caregivers of individuals with Fragile X, including planning for their long-term care.

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