Bleeding Disorders Awareness Month: Factor 7 Deficiency - Advocacy in Action

13/03/2025 32 min Temporada 5 Episodio 3
Bleeding Disorders Awareness Month: Factor 7 Deficiency - Advocacy in Action

Listen "Bleeding Disorders Awareness Month: Factor 7 Deficiency - Advocacy in Action"

Episode Synopsis

In honor of Bleeding Disorders Awareness Month, Flow is talking about advocacy in action for Factor 7 Deficiency. Our guest Stacy shares challenges with extreme menstrual pain and dismissed symptoms, emphasizing the importance of persistence while navigating a broken healthcare system where rare conditions are poorly understood. Despite facing systemic hurdles, keeping up with current research and working with several bleeding disorder foundations helps Stacy move the proverbial needle in accessing treatment.   Program Notes:   Episode Links: https://ches.education/board https://www.bleeding.org/bleeding-disorders-a-z/types/other-factor-deficiencies/factor-vii   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond  Twitter @geniuspills  Tik Tok @jrichsocal   HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org

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