Today's conversation with Steph from @RosieLifewithGrey is truly special. Steph shares with us an incredible, scary and hopeful journey she has been on with her CF struggle. Cystic Fibrosis is a rare disease and as such it is not properly supported in Canada. She shares her unbelievable and heroic story of fighting to breath and get her hands on a new medication, not yet in Canada, to help her do that. Now years later she has dramatically improved her lung capacity (however it is still under 50%) and she has become an advocate for other CF families trying to gain access to this lifechanging medication. Steph is a true advocate - she is an amazing voice for families and patients, she knows the facts and she is creative and determined online where she gets her message out. I also love following Steph and her family because she has those down to earth IG bestie vibes and you just know sitting on her pretty fall porch sharing a tea would be the most healing and fun afternoon!More about CFGetLoud - https://www.cfgetloud.ca/Follow Stephanie @rosielifewithgrey

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