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Listen "Diana Pangonis, Director of Family Services for NTSAD"
Episode Synopsis
CPN's Jennifer Siedman talks with Diana Pangonis, Director of Family Services for NTSAD. For the very first time since its beginning over 60 years ago, the NTSAD community has or is anticipating early stage clinical trials for its diseases, Tay-Sachs, GM-1, Sandhoff, and Canavan. It's a new landscape for the NTSAD families. Jennifer talks with Dianoa about what supporting families through the clinical trial experience looks like.
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