Demystifying the Use of Health Data for Research w/ Evelyn Pyper

20/04/2023 39 min

Listen "Demystifying the Use of Health Data for Research w/ Evelyn Pyper"

Episode Synopsis

Tune in weekly to deep-dive into the ways money affects caregiving, life, and relationships with renowned special guests in the caregiving space. This week, we talk to Evelyn Pyper of @PicnicHealth about demystifying the use of health data for research.
Evelyn Pyper is the Evidence Strategy Lead at PicnicHealth, a patient-centric real-world data company. Her career in Real World Evidence (RWE) spans the public and private sector as well as regional and global markets. Evelyn has a BHSc in Health Sciences with a minor in Psychology from McMaster University and a Master of Public Health (MPH) degree from Queen’s University. Evelyn is currently completing her doctorate (DPhil) in Evidence-Based Health Care at the University of Oxford, with a focus on digital health.
In this episode—

What are the different ways that data can be used for health research?
Difference between real world data (RWD) and real world evidence (RWE)
Challenges associated with collecting and analyzing RWD for health research
Benefits of using RWD for health research
What is “patient-centric” vs. “patient-mediated” vs. “patient-generated?"
Processes to ensure privacy and protection of patient health data
Processes to ensure secure storage and transmission of patient health data
How else can patients be assured that personal health data will be used responsibly in health research?
How people can be empowered to control their own health data
Benefits for patients or caregivers from participating in health research
What are the ways in which findings from health research can be translated into practice?

Find Picnic Health online at https://picnichealth.com/givers?utm_source=givers&utm_medium=affiliate  or on social at https://www.facebook.com/picnichealth.

More episodes of the podcast Cost of Caring