In this episode of Conquering Your Clownfish, I sat down with Marci Dunning, a medical mom, and parent to her daughter Freya, who has the rare Cornelia de Lange Syndrome. Marci shares the impact this has had on her family, and the challenges of raising a child with a life-altering condition. She discusses the weight of anticipatory grief, the struggle to plan for an uncertain future, and the power of living in the present. Offering invaluable insights for families facing similar challenges and those seeking to understand the complex world of rare disabilities, this episode is a must-listen for anyone grappling with simply wanting to expand their perspective on disability and parenthood. 

 

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