Being Rare Podcast

Por: Sarita Edwards
Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration.

Follow us on social media @beingrarepodcast. Got questions about the show? Email us - [email protected]!
111 episodios disponibles

Latest episodes of the podcast Being Rare Podcast

Mostrando página 2 de 6

Ep 89. 9/11 #podcast #911 #beingrare 11/09/2023
Ep 88. A Poor Newborn Screening Experience 07/09/2023
Ep 87. Our Newborn Was Refused Newborn Screening 01/09/2023
Ep 86. One Minute Monday - Peer Support #podcast #oneminute #peersupport #supportgroup 28/08/2023
Ep 85. A Church Experience 24/08/2023
Ep 84. The Small Group - #Inclusion #podcast #raredisease #church #smallgroup 21/08/2023
Ep 83. Summer Road Trip 16/08/2023
Ep 82. One Minute Monday - Preparation #podcast #selfcare #mentalhealth #beingrare 14/08/2023
Ep 81. Ten Minutes of Sarita - Full episode 09/08/2023
Ep 81 #sizzle - Prioritizing Self Care #podcast #beingrare #selfcare #mentalhealth 08/08/2023
Ep 80. One Minute Monday - Priorities 07/08/2023
Ep 79. Welcome to Season 3 of the Being Rare Podcast! 03/07/2023
Ep 78. One Minute Monday: Isolation - When You Don't Feel Welcomed 03/04/2023
Ep 77. Trisomy Awareness Month! A conversation with E.WE Foundation partners 28/03/2023
Ep 76. One Minute Monday: Bullying - When Your Kid Is The Joke Of Conversation 20/03/2023
Ep 75. One Minute Monday: Words - When Someone Uses The Word Retarded 13/03/2023
Ep 74. One Minute Monday: Community - When Community Becomes Family 06/03/2023
Ep 73. A Being Rare Podcast - Rare Disease Day Exclusive #podcast #beingrare #raredisease 28/02/2023
Ep 72. One Minute Monday: Friendship - Hiring Your Child A Friend 27/02/2023
Ep 71. One Minute Monday - Feeling Judged 21/02/2023
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