Rare Candor

Por: Pam Squires & Sarah Jones

Welcome to Rare Candor, a podcast for people who live with and love someone with a rare disease. We'll talk about medications, accessing care, navigating everyday lift, policy and insurance issues, and more. Living with a rare disease can be an exhausting, annihilating, scary, lonely, unpredictable and invisible - for the people with their disease and those that love them. We promise not to make you depressed, peppered in humor is guaranteed, albeit likely dark humor - but we trust you will appreciate the rare candor.

14 episodios disponibles

Latest episodes of the podcast Rare Candor

Acceptance Is Not Failure: Navigating Rare Disease's Invisible Battles 13/03/2026

Unseen Battles: Navigating Kidney Disease with ANCA Vasculitis 14/01/2026

Unveiling Fasenra: The Newest Treatment for EGPA Vasculitis 25/10/2025

More Information Please: A Second Opinion Can Change Your Life 14/07/2025

Intimacy: Being a Human within the Context of Rare Disease 22/05/2025

Upside Down Incentives: What's Driving Up Drug Prices? 26/03/2025

Under the Microscope: Unmasking The Creation of New Treatments 06/02/2025

Fighting the System: Breaking Through Prior Authorization Barriers with Tenacity & Grit 16/11/2024

Challenging Diagnosis. Unyielding Courage. 22/09/2024

From Shadows to Strength: The Quest of Acceptance 10/09/2024

Whispers of Hope: Escaping the Prednisone Trap 05/08/2024

Surviving The Suck: Getting Through the Bad Days 23/07/2024

Rare & Resilient: Crushing It With Healthcare Partnerships 05/07/2024

Rare Candor: A Podcast for People Who Live With or Love Someone With A Rare Disease 07/06/2024

Latest episodes

Rare Candor

Latest episodes of the podcast Rare Candor

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