In this episode of the Post-Exertional Mayonnaise podcast, Daniel Moore speaks with Lisanne Jacobs, a songwriter and chronic illness advocate, about her journey with ME and the role of creativity in coping with chronic illness. Lisanne shares her personal story, including her diagnosis, struggles with healthcare, and the importance of music as a form of expression and healing. They discuss the challenges of navigating the healthcare system, the impact of chronic illness on daily life, and the hope that can be found in small improvements. Lisanne also reflects on her songwriting process and the influence of other artists on her work, emphasising the importance of connection and representation in the chronic illness community.

Homeostasis lyrics:
It gets harder every fall
When it rains through bedroom walls,
it pours
‘til doctor’s don’t care anymore
You fake the art of getting by
Weary hearts, blurry sights set on
elusive finish lines
We’re a long, long way from
homeostasis
There’s no time to waste, but
we’re caught in a loop
Oh we long for a taste of something
good
Crossing off each day we’ve made it
through
And it’s ever so still in the waiting room
Hmmmmm
“When you get stuck, there’s a window”
says the lucky one on the other side
(But) all we do is try
“Where there’s a maze, there’s an exit”
Oh it’s a race
against bitter bones to find it
before all of our youth runs dry
We’re a long, long way from
homeostasis
When all else fails,
time could move us through

When the green turns grey,
oh we’ll get creative
Painting old vases ‘til we’ve paid our dues
And it’s ever so dark but
we could make it through
one more year in this waiting
Roooooooom
Here, take my hand,
let’s err on the side of hope
My dear, take the stand
and swear that you won’t let go
Oh the least we have is
not being (the least bit) alone...
...while breathing the art of getting by
Weary hearts, blurry sights set on
elusive finish lines
We’re a long, long way from
homeostasis
When everything aches,
love could move us through
When the green turns grey,
oh we’ll get creative
I’ll sing your praises
’til you’re singing too
And it’s ever so dull but
we could paint it blue
Every inch of this waiting room
Oh it’s ever so still but
love will lead us through
one more day in this waiting room

Lisanne's music can be found on Instagram:
https://www.instagram.com/lisannejacobsmusic?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==

Daniel's track: quit button
https://youtu.be/0w31Z4bFqQ0?si=UWREvOxtCf0X_NWz

Turnto link:
https://www.turnto.ai/?utm_source=link&utm_medium=share&utm_campaign=pempodcast

Contact us:
https://www.pempod.com/
[email protected]

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