From Nurse to National Advocate for Cleft Care & the Ensuring Lasting Smiles Act with Luci Capo Rome

23/09/2025 49 min Episodio 84
From Nurse to National Advocate for Cleft Care & the Ensuring Lasting Smiles Act with Luci Capo Rome

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Episode Synopsis

In this inspiring episode of the Our Forever Smiles podcast, host Laura Arroyo talks with Luci Capo Rome, a retired advanced practice registered nurse born with a bilateral cleft lip and palate. Luci shares her decades-long journey as an advocate for the cleft community, from supporting women born with cleft in the 1980s to her current role as Kansas state lead for the Ensuring Lasting Smiles Act. She discusses her work with Smile Train, the Cleft Community Advisory Council, and the Cleft Community Support Council, while shedding light on the urgent need for lifelong insurance coverage for those with congenital anomalies.

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