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Listen "Loving Large: A Mother's Rare Disease Memoir With Patti Hall"
Episode Synopsis
ONCE UPON A GENE - EPISODE 033
Loving Large: A Mother's Rare Disease Memoir With Patti Hall
This episode is about the larger-than-life love that a mother has for her son. Patti Hall is the author of the book, Loving Large: A Mother's Rare Disease Memoir. In reading her book, I learned a lot about the rare disease called gigantism. I’m so grateful when people share their stories about the rare disease life because it’s so important in so many ways and you never know who will be touched by it.
EPISODE HIGHLIGHTS
Why did you write this story?
What is your son's diagnosis and what was happening in those early days?
How long did it take to have a treatment plan?
When you were searching for doctors and surgeons, were you finding they were intrigued or afraid to get involved?
Was writing this memoir therapeutic for you?
What would you say to parents with young babies who are just receiving a diagnosis?
What would you say to parents like me who have a story to tell, but they aren't writers?
LINKS AND RESOURCES MENTIONED
Loving Large: A Mother's Rare Disease Memoir
https://pattimhall.com/loving-large-book/
Patti Hall Website
https://pattimhall.com/
Patti Hall Facebook
https://www.facebook.com/pattimhallwriter
Patti Hall Instagram
https://www.instagram.com/patti_m_hall/
Patti Hall Twitter
https://twitter.com/pattimhall
TUNE INTO THE ONCE UPON A GENE PODCAST
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CONNECT WITH EFFIE PARKS
Website
https://effieparks.com/
Twitter
https://twitter.com/OnceUponAGene
Instagram
https://www.instagram.com/onceuponagene.podcast/?hl=en
Built Ford Tough Facebook Group
https://www.facebook.com/groups/1877643259173346/
Loving Large: A Mother's Rare Disease Memoir With Patti Hall
This episode is about the larger-than-life love that a mother has for her son. Patti Hall is the author of the book, Loving Large: A Mother's Rare Disease Memoir. In reading her book, I learned a lot about the rare disease called gigantism. I’m so grateful when people share their stories about the rare disease life because it’s so important in so many ways and you never know who will be touched by it.
EPISODE HIGHLIGHTS
Why did you write this story?
What is your son's diagnosis and what was happening in those early days?
How long did it take to have a treatment plan?
When you were searching for doctors and surgeons, were you finding they were intrigued or afraid to get involved?
Was writing this memoir therapeutic for you?
What would you say to parents with young babies who are just receiving a diagnosis?
What would you say to parents like me who have a story to tell, but they aren't writers?
LINKS AND RESOURCES MENTIONED
Loving Large: A Mother's Rare Disease Memoir
https://pattimhall.com/loving-large-book/
Patti Hall Website
https://pattimhall.com/
Patti Hall Facebook
https://www.facebook.com/pattimhallwriter
Patti Hall Instagram
https://www.instagram.com/patti_m_hall/
Patti Hall Twitter
https://twitter.com/pattimhall
TUNE INTO THE ONCE UPON A GENE PODCAST
Spotify
Apple Podcasts
Stitcher
Overcast
CONNECT WITH EFFIE PARKS
Website
https://effieparks.com/
https://twitter.com/OnceUponAGene
https://www.instagram.com/onceuponagene.podcast/?hl=en
Built Ford Tough Facebook Group
https://www.facebook.com/groups/1877643259173346/
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