Hospital Survival Kit - Advocating for Your Child Without Losing Yourself Once Upon A Gene 17/10/2024 23 min Episodio 247 Listen "Hospital Survival Kit - Advocating for Your Child Without Losing Yourself" Reproducir Descargar episodio More episodes of the podcast Once Upon A Gene Smarter Speech: How Q-Voice Is Changing AAC for Families and Therapists with Lana Marcucio 24/10/2025 Why Genetic Testing Matters: The Case for Genetic Testing and the Start Genetic Movement - with Geraldine Bliss 16/10/2025 Mini Brains in a Dish: Organoids and the Future of Personalized Rare Disease Medicine 02/10/2025 Healing in the Mess: Storytelling, Friendship & Finding Love - Author of The Unlikely Village of Eden, Emma Nadler 04/09/2025 15 Years of Simons Searchlight: Dr. Wendy Chung on How Families Shape Rare Disease Research and Spark Aha Moments - with Wendy Chung 28/08/2025 A Rare Collection - Rare Disease Storytelling with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point 12/06/2025 Finding Joy in the Journey: A Guide for Parents of Medically Complex Kids with Amber Pierson & Chelsea Kuhn 05/06/2025 From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency 15/05/2025 GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman 01/05/2025 Empowered Kids - Painless Labs :O'Ryan Health’s At‑Home Blood‑Draw Revolution with Tim Coleman 18/04/2025 Ver todos los episodios Share Facebook Twitter LinkedIn
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