Join us for a compelling conversation with Professor Lara Bloom, President and CEO of the Ehlers-Danlos Society. A strong patient advocate, Lara has a passion for pushing boundaries and fighting for progression DE&I in healthcare and LGBTQIA+ rights.Throughout our discussion, we dissect the complex relationship between health equity and inclusion on a global scale. The episode also explores the transformative power of patient engagement in achieving health equity, emphasising the importance of true representation and inclusion.Chapters00:00:00 - Introductions00:01:20 - Lara's journey into advocacy00:04:16 - State of DEI in healthcare00:10:45 - Challenges viewed through a global lens00:15:00 - Interplay between health equity and diversity & inclusion00:17:40 -  Understanding diverse communities and minorities00:24:05 - Need for better representation in healthcare00:29:09 - Evolution of DEI in healthcare00:35:13 - Initiatives working to further DEI in healthcare00:37:18 - Understanding privilege in the context of healthcare00:40:42 - Mindset for overcoming challenges00:44:03 - Future and advice for healthcare stakeholders00:47:00 - Advice for patients and patient advocates00:48:56 - Power of patient organisations00:54:53 - Reflections with Caitlin and ClarindaResources and abbreviationsEhlers-Danlos Support Group (EDS UK)EDS - Ehlers-Danlos SocietyEDNF - Ehlers-Danlos National Foundation, USHSD – hypermobility spectrum disordersDEI - diversity, equity, and inclusionNHS - National Health Service, UKGlobal Genes conferenceCF – cystic fibrosisESG – environmental, social, and governanceWorld Health AssemblyGlobal Patient Movement CatalystEDS Road to 2026 World Health SummitHave feedback or suggestions for us? We'd love to hear from you!Website: notjustpatients.comLinkedIn: Not Just PatientsEmail: [email protected]

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