86: Hot Off the Press with Ally Roets and Kristin Zwickau

FSHD Straight Talk with Tim Hollenback
27/10/2022 25 min Episodio 86
86: Hot Off the Press with Ally Roets and Kristin Zwickau

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Episode Synopsis

This month  we have two great guests, Ally Roets and Kristin Zwikau, who are leading the charge with our early-onset and pediatric FSHD families. In addition to coordinating our international early-onset chapter, Ally hosts our monthly Parents Roundtable and hotline. They're with us on this episode to talk about the M.O.V.E. Study and the great need for pediatric families to get involved.

More episodes of the podcast FSHD Straight Talk with Tim Hollenback

159: Do Hard Things: Movement is Medicine & Riding to Raise Awareness about Early Onset FSHD with George Pollock & Ally Roets 11/11/2025
158: Always a Work in Progress: Growth through Movement, Connection, and Adapation with Elissa 28/10/2025
157: Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion 14/10/2025
156: Lived Experience Matters: The Impact of Storytelling in Rare Disease Communities & Advocacy with Michael King 23/09/2025
155: 2025 Walk & Roll Special 20/09/2025
154: Don’t Let It Get to You: Living & Growing with FSHD with Kendra Vaalemon 26/08/2025
153: More Laughter, More Love: Reflections on an Inter-Abled Relationship with Leah & Joe Lee 12/08/2025
152: A Career Retrospective: Over a Decade of Care, Advocacy & Writing with June Kinoshita 22/07/2025
151: A Parent’s Perspective: FSHD History, Advancements & What We Can Do Now 08/07/2025
150: The Power of Vulnerability with Aidan Mace, FSHD Straight Talk with Tim Hollenback 24/06/2025
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