Firefly Chat Episode 7(Part 1): NPC Moms React to Adrabetadex News

Firefly Chat Episode 7(Part 1): NPC Moms React to Adrabetadex News

Firefly Chat

25/02/2021 1:54PM

Episode Synopsis "Firefly Chat Episode 7(Part 1): NPC Moms React to Adrabetadex News"

Firefly Fund co-founder Pam Andrews has a heartfelt and candid conversation with nine other NPC moms from around the world regarding recent news of the discontinuation of the medication Adrabetadex. This episode gives a glimpse into the difficult circumstances NPC families are facing, as well as their personal concerns and fears about their children's futures.

Listen "Firefly Chat Episode 7(Part 1): NPC Moms React to Adrabetadex News"

More episodes of the podcast Firefly Chat