Episode 055 - Advocacy and Awareness - 2 Pillars of Finding a Cure

23/08/2023 56 min Temporada 3 Episodio 55

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Episode Synopsis

Welcome to Episode 055 of the Beyond the Diagnosis Podcast. Join us as we talk with 2 Histio Ambassadors, Drew Freedman and Nate Milam, about the importance of advocacy and awareness in the quest to find a cure.
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Resources mentioned in the podcast:

Histio Ambassador Program: https://histio.org/ambassador-volunteer-program/
For more information about Histiocytosis
Awareness Month:
https://histio.org/get-involved/raise-awareness/
World Orphan Drug Congress:
https://www.terrapinn.com/conference/world-orphan-drug-congress-usa/index.stm
How to find your state representatives: https://www.house.gov/representatives/find-your-representative
Get alerts for different things going on at the federal level including legislation that is on its way to the President’s desk: https://www.congress.gov/get-alerts
Histiocytosis Association National Conference Information: https://www.histio.org/nationalconference
Follow the Histiocytosis Association on social media:

§  Facebook: https://www.facebook.com/histio
§  Twitter: @histiocytosis
§  Instagram: histiocytosis_association
§  YouTube: https://www.youtube.com/histiocytosisassoc
   
Commercial Background Music:
o “Wake Up to the Renaissance” Music by AudioCoffee from Pixabay
o   "Ambient Inspiration” Music by The
Mountain from Pixabay

Theme Music: “Heroes” by Noah Smith


























































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