I sit down with the beautiful Madi Rohan, who shares her deeply personal story of becoming her mum's primary carer during her teenage years. Madi opens up about her mother's battle with Huntington’s disease, a progressive and devastating condition that affects both the body and mind.
Through our conversation, Madi explains Huntington’s disease to those unfamiliar and shares how it transformed her mum’s daily life. Madi reflects on stepping into the carer role at such a young age, navigating immense challenges, and the emotional toll of watching her mum go through this disease.
We delve into her road to healing and Madi offers invaluable advice for others in similar situations, highlights resources that can help families affected by Huntington’s, and shares the lessons she’s learned about grief, resilience, love, and hope.
Whether Huntington’s disease has touched you or you want to hear an incredible story of courage and learn more about the condition, this conversation will leave you feeling deeply moved!
Find Madi : Instagram
Resources we spoke about: Motherless Daughters & Huntington's Victoria


💗 Thank you so much for being here on this adventure with me! 💗
- Hayley xo
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The Before You Bloom Podcast is recorded on the lands of the Wurundjeri people of the Kulin Nation. I would like to recognise their continuing connection to land, water, and culture and pay my respects to their elders past, present, and emerging, and any Aboriginal and Torres Strait Islander people listening today.

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